Larissa King
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  • well. that happened.

    Today it has been two years since I was diagnosed with Complex Regional Pain Syndrome.

    This morning, both my feet were the same happy and healthy color, size, and temperature. Occasionally the left foot feels hot and itchy. I ignore the heat and itch, and they go away pretty quickly. There’s not much that I would call pain anymore.

    This trick often works for me with other pain too. Like: I feel my lower back start to get fussy, and I roll my eyes and get on with my day. Pretty soon I’ve forgotten all about it.

    I want to say something about how I tried to ignore the pain in my belly this winter, how I believed I was only feeling it because I was boiling mad at someone I used to consider a friend, but it didn’t go away because it was actually appendicitis. My appendix ruptured, and I ended up in the hospital for four days. I had two surgeries in four months. I’m just about recovered from the second one.

    I want to say something wise about pain and fear, or about finding balance, or about learning to trust oneself. But I’m fresh out of wisdom.

    The only thing that’s coming to mind is something my mentor once said to me: “I feel like this is a place where we can sit and say, ‘Well. That happened.'”

    → 11:57 AM, Apr 27
  • Helpful hint #5613:
    Don’t schedule the CT scan and the follow-up with the surgeon on the same day if you can help it.

    → 5:56 PM, Dec 21
  • Helpful hint #5612:
    If they take your temperature with a forehead thermometer and you have doubts about the result, ask them to re-check it with an oral thermometer.

    → 5:55 PM, Dec 21
  • incidental finding: my belly button seems to be full of krazy glue

    → 6:33 PM, Dec 12
  • Got my surgical drain removed today, and Tuesday’s abdominal CT looks good 🎉

    → 5:02 PM, Dec 5
  • First night in over a week that I didn’t completely soak at least one pillowcase with sweat! 🥳

    → 8:01 AM, Nov 26
  • “Illness is a part of every human being’s experience. It enhances our perceptions and reduces self-consciousness. It is the great confessional; things are said, truths are blurted out which health conceals.”

    ― Virginia Woolf, On Being Ill

    → 4:14 PM, Nov 25
  • Helpful hint #5611

    If you’ve just had a laparoscopic procedure, ask your nurse for simethicone. They will probably have to get approval from a doctor, but the doctor will usually say yes. Most of the pain you’ll be having will be because of excessive gas in your abdomen, and simethicone will help much more with that than opioids. It’ll be a lot safer too.

    → 8:42 PM, Nov 22
  • still ill / home again

    I’m sure most people are at least vaguely aware, as I was before today, that “home from the hospital” does not necessarily mean “well.” I am acutely aware of it this morning.

    Here’s how it currently is with me: Although my temperature is now within what is considered normal limits, it’s still slightly elevated for me. I have night sweats. I’m still coughing quite a bit as my throat continues to recover from being intubated for the surgery. I move slowly, and I don’t have much stamina. I’m a little dizzy. My belly still hurts sometimes, and it has a surgical drain hanging from it.

    That said, every day so far has been a slight improvement. I’m moving more easily than I did yesterday, and the coughing jags are briefer and less violent. There’s less pain.

    And of course, it is a great pleasure to be home: to sleep without being woken up for blood draws and temperature checks, to eat when I feel like it, to get my own pills, to spend time with Dave and Chili, to hear the rain on our roof.

    → 7:25 AM, Nov 22
  • today

    a cat sitting on a patchwork quilt (which is draped over a pair of human legs). cat is facing away from the camera, holding a toy under its right front paw, watching squirrels on a nearby TV
    → 7:09 AM, Nov 22
  • every other morning this week

    the view from a hospital bed
    → 7:06 AM, Nov 22
  • I pooped this morning, so they are sending me home today 💩

    → 12:34 PM, Nov 21
  • The bed breathes and stretches and sighs, trying to prevent bedsores and clots. Even in moments when the bed is still, sometimes the room feels like a giant slo-mo washing machine

    → 12:30 PM, Nov 21
  • Rude awakening: 4:30 blood draw happened at 3:45 today

    → 5:04 AM, Nov 21
  • Got my third roommate this evening (it’s a double room). Weird to feel like an old timer after being here less than a week

    → 8:41 PM, Nov 20
  • Why on earth would you call something that you’re asking people to pee in, “a hat?”

    → 8:43 AM, Nov 20
  • Four phlebotomists have now failed to get a sample out of my poor roomie

    → 5:47 AM, Nov 20
  • 4:30 blood draws. Good times. There’s someone speaking Spanish in the hall, and I wish the door was open so I could have a better chance of successfully eavesdropping

    → 5:44 AM, Nov 20
  • My roomie’s inflating and deflating leg cuffs, and my IV pump, are singing an almost insectoid duet. Can’t see the moon from here, though, just a bright login screen in the corner of the room below the TV (which is mercifully silent)

    → 2:00 AM, Nov 20
  • Still in the hospital. Have given myself a new job title: fartist

    → 1:52 AM, Nov 20
  • The two hardest things about the hospital for me: constantly needing help, and people constantly touching me and my stuff without asking. I guess I am lucky to be able to be grumpy about those things, though

    → 2:48 AM, Nov 19
  • Oddly, I have been here six hours and I am still wearing the clothes I arrived in

    → 3:10 AM, Nov 18
  • In the hospital with appendicitis ☹️

    → 2:38 AM, Nov 18
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